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Transplant list evaluation

  1. My son is being evaluated for the transplant list at CHOP. He is unvaccinated at 13 months. He went into heart failure at 11 months from a rare genetic syndrome called Barth Syndrome.  I'm trying to get him a religious exemption from being vaccinated. It is hospital policy. Not that of UNOS as I initially thought. They're not going to qualify him for a heart if I don't vaccinate him with most of the vaccines he missed in his first year of life. We are possibly and hopefully transferring to our home state of AZ to PCH. How do I navigate this!?

You are at the mercy of the hospitals on this one, unfortunately. You'll have to ask around the hospitals and see who can do the transplant without vaccines.

If you must vaccinate, I'd wait as long as possible before doing so and give a LOT of vitamin C before and after.

Good luck. This is obviously a very difficult situation.

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andrew adach
andrew adach (@guest_30)
2 years ago

Brought tears to my eyes. Brilliant! A new tack on the vaccine insanity.I am a 75 years young dancer and my forwarding to 70 or so friends had worth the watch for the dancing alone. Well done Sophia. I hope you listen to Van Morrison.A special thanks to the parents.

David thomas
David thomas (@guest_66)
1 year ago
Reply to  andrew adach

How were you able to raise your children unvaxed schools doctors etc ?

Natalie (@guest_59)
2 years ago

How are the parents handling schooling? there are no exemptions where we live

Cherrese (@guest_61)
2 years ago

My biggest issue is finding a doctor our unvaccinated children. The doctors treat us like we are harming our children if we say they aren’t vaccinated. My first child doctor told us we couldn’t come back to the clinic if we weren’t planning to vaccinate our children. We were able to find another clinic and a doctor who understood but she quit and left us with doctors who look us as if we are doing things wrong because we have made the choice not to vaccinate

Karen L
Karen L (@guest_160)
2 months ago
Reply to  Cherrese

Are there any chiropractors in your area? I work for one and most chiropractors do not vaccinate their kids and they might know of local doctors that won’t push vaccines.

Danielle (@guest_101)
1 year ago
Reply to  Cherrese

My argument there would be as my friend did if you can sign something guaranteeing that my child will not be harmed I’ll vaccinate. Problem is they won’t and will shut up.

Would love your thoughts, please comment.x
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